ABOUT

 

The HBCU Sickle Cell College Tour is an event geared towards educating and raising awareness for sickle cell on Historically Black Colleges and University campuses.

 

Did you know 1 in 13 African Americans are sickle cell trait carriers? Many unknowingly have sickle cell trait, which too often leads to their child(ren) having sickle cell disease if they reproduce with someone who is also a carrier. This is why it is important to provide education and awareness to the African American community. Not only will students learn about how this disorder is inherited, they will also have a chance to get tested for sickle cell trait.

 

This event will be informative and empowering!

 

 

HOSTS

 

#BoldLipsForSickleCell

A fresh and relevant movement, intended to put a bold and flattering spotlight on the disorder and its community. As a 501(c)3 non-profit organization that empowers and raises awareness through advocates wearing bold lipstick colors, they are creating a loud and boisterous statement, which in turn gains attention along with conversations being sparked about the disorder.

 

Sickle Cell 101

A non-profit organization that specializes in sickle cell education on social media and other platforms. Our slogan is, "education + awareness" because we strongly believe these two factors are vital contributors to the progression of the disorder, with the end goal of a universal cure.

 

Through education we are able to equip those affected by sickle cell, around the world, with a comprehensive understanding of the disorder. Equally, by raising awareness, our goal is for sickle cell to become a household name to encourage genetic testing, generate funding, and further research efforts.

 

 

POWERED BY

 

Sickle Cell Community Consortium

The Sickle Cell Community Consortium is a US-based non-profit formed in 2014 to “harness and amplify the power of the patient voice”. The Consortium is comprised of sickle cell community-based organizations (CBOs), patient and caregiver advocates, community partners and medical and research advisers. These stakeholders collectively form the General Assembly of CBOs and Advocates, the decision-making body of the Consortium. The Consortium acts as an organizing entity providing the framework for the stakeholders of the General Assembly to apply a model of Collective Impact to define problems and gaps in the sickle cell community, identify strategies to address those needs and gaps, and determine the CBO, Community, and Corporate partnerships best equipped to implement those strategies to achieve significant and sustainable change.

 

 

PARTNERS

 

Sickle Cell Champions Association (SCCA)

The Sickle Cell Champions Association was formed to bring a male perspective to not only the youth, but also for new parents, and to enlighten the communities who are not aware of what SCD is, how it affects the body and what their child may possibly encounter within their lives. We strive to be an effective voice, for the Sickle Cell Disease patient, family member and male community.

 

The Sickle Cell Champions Association in projecting the “Champions Mentoring” program, seeks to bring a broader voice to the male Sickle Cell community. We are aware that it is extremely imperative, for our male perspective to be heard understood, by raising awareness of this rare disorder, through the avenues of education, mentorship, advocacy and self-awareness. Again, the S.C.C.A. will implement programs that will benefit every Sickle Cell community.

 

 

EDUCATION

 

The sickle cell education portion will be provided by Sickle Cell 101, a nonprofit organization (certified by the Department of Public Health of California) that specializes in sickle cell education. Sickle Cell 101 is a 501(c)(3) non-profit organization, whose mission is to provide education within the sickle cell community, while raising awareness for sickle cell to the general public. Subject matters covered in the education portion will include: who sickle cell affects, how it is inherited, the differentiation between sickle cell trait and sickle cell disease, and other important information about the disorder. Sickle Cell 101 will also provide basic sickle cell trait counseling.

 

 

AWARENESS & EMPOWERMENT

 

By combating the disabling stigmas paired with a can-do attitude, #BoldLipsForSickleCell will provide entertainment, resources such as information IEPs for college students affected by sickle cell disease, and discuss the importance of sickle cell trait testing.

 

 

CONTACT US

 

Questions? Comments? Suggestions? Send us an email.

Interested in sponsoring this event? Learn more about our sponsorship packages.