"Working in sickle cell is a calling. Sickle cell patients rely on their faith to live. They are underserved, not believed, and suffer great unpredictable pain at a moment’s notice. This group of patients and family members are in need of encouragement, education, and excellent care. My mission is to teach prevention, good medical care, and give hope to this amazing group of people. Every vocation and job is a ministry and this what I am called to do." --Allan F. Platt
If you have ever researched for information about sickle cell online, chances are you've found yourself on the Sickle Cell Information Center’s website scinfo.org, at some point. Over the past two decades, many sickle cell patients, their parents and/or caregivers, and even healthcare providers have relied on this website as a vital resource to learn more about the disorder. With topics covering sickle cell education, news, research updates and access to up-to-date sickle cell resources worldwide, the Sickle Cell Information Center website served as the leading web-based resource for information about sickle cell disease for the past twenty years. The Sickle Cell Information Center website is widely used, both within the United States and around the world, averaging 13,500 visits per month, and over 150,000 per year. And to no surprise, our 2015 Sickle Cell Advocate of the Year Allan Platt has served as co-founder and designer, of the scinfo.org since its inception in 1997. (We’re just getting started.)
“Allan has gone above and beyond in the fight for sickle cell. As the primary sales manager for his Hope & Destiny book series, I can personally say that not a week goes by that I do not hear from a customer about how terrific his sickle cell book is. What Hope & Destiny has done for the sickle cell population cannot be measured.” -- Daniel De Rousseau
In his efforts to provide vital information to patients and parents regarding sickle cell, Allan co-authored a patient guide book on sickle cell disease and trait titled Hope and Destiny, a Patient and Parents guide to Sickle Cell Disease, which was distributed by Hilton Publishing in its fourth edition in 2016.
Reviews of the book include:
“[Hope and Destiny is] the ‘bible’ for everyone that lives with Sickle Cell. This is a must have for anyone that lives with (caregiver) Sickle Cell. I have it always ready to take to the hospital with us!” -- Jess, Amazon Customer
“This is a marvelous piece of work. I think it will be a tremendous asset to sickle cell resource libraries.... The lay person can read and understand, yet also be meaningful for healthcare providers as well." -- Louise Dorn. R.N. Sickle Cell Center, University of Illinois Medical Center
Allan also co-author of Overcoming Pain, a guide regarding chronic pain, its causes, diagnoses, and treatments through modern, cutting-edge, and alternative medicines (published in September 2006); and author of Evidence Based Medicine for PDAs: A Guide for Practice Published by Bartlett and Jones March 2008.
Allan’s devotion to serving the sickle cell community doesn’t stop there. He is also the editor of the monthly sickle cell e-newsletter that reaches over 5,000 people worldwide that provides news and research on sickle cell. The newsletter includes upcoming conferences, highlights work done within the sickle cell community, and includes medical literature.
Allan advocates for sickle cell patients by sharing and encouraging other sickle cell centers to update their sickle cell care models to a 24/7 facility center that provides episodes intervention as well as case management care, much like the
Georgia Comprehensive Sickle Cell Center at Grady Health System (the world's first dedicated 24 hour emergency center for sickle cell patients) “This model provides emergency care, in-patient care, psychosocial support, medical records access, research support, and job transference skills to patients.” Moreover, Allan states that patients are more likely to come for treatment at the first onset of pain when they know they will not be judged as “drug-seekers”.
More about Alan Platt
Allan Platt, PA-C graduated with a BS in Health Systems Engineering from the Georgia Institute of Technology in 1977, a BS in Medical Science from the Emory University School of Medicine, Physician Assistant program in 1979, and a Masters of Medical Science in Career Physician Assistant from Emory in 2006. From 1984 until 2004 he was Program Coordinator, and Physician Assistant at the Georgia Comprehensive Sickle Cell Center at Grady Health System.
In 2002 Allan received the, Paragon Teacher of the Year Award from the AAPA, and the SAAPA President's award in May 2007. He is currently an academic coordinator and director of admissions at the Emory University School of Medicine Physician Assistant Program. He is author of the e-Connections feature in the AAPA publication PA professional and was the Technology in Education feature editor for the Journal of Physician Assistant Education until 2013.
How It's Inherited
Social Media Education
Events & Outreach
WHAT'S SICKLE CELL?
Sickle Cell Disease
How It's Inherited
Sickle Cell Trait
Ask Dr. Q
Expert Opinion Pieces
Become a Member